Privacy Notice: Research
This practice participates in research. We will only agree to participate in any project if there is an agreed clearly defined reason for the research that is likely to benefit healthcare and patients. Such proposals will normally have a consent process, ethics committee approval, and will be in line with the principles of Article 89(1) of GDPR.
Research organisations do not usually approach patients directly but will ask us to make contact with suitable patients to seek their consent. Occasionally research can be authorised under law without the need to obtain consent. This is known as the section 251 arrangement1. We may also use your medical records to carry out research within the practice.
Please speak to the practice if you wish to object.
Data Controller Contact Details
Data Protection Officer Contact Details
Purpose Of The Sharing
Lawful Basis For Processing or Sharing
Identifiable data will be shared with researchers either with explicit consent or, where the law allows, without consent. The lawful justifications are;
Article 6(1)(e) may apply “necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller”
And in addition there are three possible Article 9 justifications.
Article 9(2)(h) – ‘processing is necessary for the purpose of preventative…medicine…the provision of health or social care or treatment or the management of health or social care systems and services...’
Rights To Object
You do not have to consent to your data being used for research. You can change your mind and withdraw your consent at any time. Contact the Data Controller or the practice.
Right To Access And Correct
You have the right to access any identifiable data that is being shared and have any inaccuracies corrected.
The data will be retained for the period as specified in the specific research protocol(s).
Right to Complain
You have the right to complain to the Information Commissioner’s Office, or by calling their helpline Tel: 0303 123 1113 (local rate) or 01625 545 745 (national rate)
There are National Offices for Scotland, Northern Ireland and Wales, (see ICO website)
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